Laura took a deep breath and mustered up the courage to call the neurology clinic. Families of sick children were supposed to wait patiently. The clinic nurse had made this clear eight weeks earlier when Laura first called to check up on Bryson’s lab results. But parents quickly learn that it pays to be pushy. AndContinue reading “We Have a diagnosis: GRIN1”
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Baseball and Belonging
My son Bryson and I were among the tens of thousands who congregated on Front Street after game five of the Blue Jays -Rangers division series. It was undoubtedly one of the best moments of my life. Walking back to the parking lot, we couldn’t move more than a few steps without someone coming upContinue reading “Baseball and Belonging”
My Father’s Day Pledge
My son Bryson is a gift. His blue eyes and smile light up the world for everyone around him. He is also disabled. After years of tests and zero results all we know is that he has a rare but undiagnosed genetic disorder. Almost five, he can’t play hockey or video games or hide andContinue reading “My Father’s Day Pledge”
Keith McArthur 